Some of you may remember that Larry had prostate surgery at the beginning of 2019. We originally had high hopes that the surgery would be the end of Larry’s prostate cancer. Towards the end of 2019, we were told that Larry was cancer-free, and we celebrated.

However, things changed in late December 2019, when one of Larry’s routine blood tests came back with a worrying result. Hoping it was just a blip, he did another test, and the result was worse. We were referred to a local radiation oncologist here in Holland, and told that there was a high probability that the cancer had returned.

Prostate cancer can hide for a long time!

The problem with prostate cancer recurrence is that it’s not always easy to know where the cancer is hiding. After a couple more blood tests, the radiation oncologist referred Larry for an Axumin PET scan in Grand Rapids at the beginning of May. However, here in the USA, it often seems that medical treatment is decided not so much by the doctors as by the insurance companies. Our health insurance company refused to approve the PET scan, so the appointment was cancelled. We were very disappointed, but focused on Larry’s shoulder surgery, which had been scheduled for May.

Last summer, as he recovered from shoulder surgery, Larry had more tests. He had a bone scan, an MRI, a kidney ultrasound, and a renal nuclear scan. None of those tests showed us where the cancer was hiding. We continued life as normal, as far as we could – driving up to Bay View for days and weekends by the lake, and driving back to Holland for more doctors’ appointments.

Finally, a PET scan!

When summer was over, we were growing anxious that Larry hadn’t started any treatment for his cancer recurrence. We decided to try again to get the much-needed PET scan. After some online searching, we found out that there was a clinical trial of a PSMA PET scan at the University of Michigan hospital. We took a deep breath, contacted the hospital, and asked if Larry qualified for the scan. Our insurance once again refused to cover it, so we were left with no option but to agree to pay the cost ourselves.

At the start of November, we drove to Ann Arbor, where Larry had the PSMA PET scan. Here he is, at the hospital, before the scan – still smiling behind the mask.

The scan results came back, showing that the cancer had spread to a lymph node. We made an appointment to see an oncologist at the University of Michigan.

Next steps

The next chapter in Larry’s treatment will include radiation at the University of Michigan Hospital. The treatment starts on Tuesday, January 19, and will be Monday-Friday; twenty sessions over four weeks. The hospital is 3 hours away from where we live, and Larry is planning to drive there (and back) every day for as long as it’s possible. We love long road-trips, right?

2020 was not the best of years. You know that already

2020 was a tough year for lots of people, us included. It left us with a ton of stress, a heap of worries, and more medical bills than we know what to do with. However, Larry’s still feeling well. He’s still writing handbell music, singing for online church services, and doing life as normal. We have each other, and friends to cheer us on, and we’re thankful.

Larry will be receiving treatment for the next six months – and by the end of this year, we should know if the treatment has been successful. We appreciate all love, prayers and positive thoughts as we go through this next chapter in our story.